Feel the burn!!

So Sjogrens Medication is kicking my booty. My eyes are sooo dry right now and Ive finally givin in and stopped eating the foods I use to eat when I wasnt on crazy medication. It gives me super bad heart burn. I'm sitting here squinting so lame. Anyway when I go blind I'm going to have an awesome seeing eye dog and/or a long stick thing...or Ill just wear this full front zip up hoodie I got in Germany and zip it all the way to the top and just walk around like that. So its like Saturday night and I'm sitting here contemplating going to bed right now. Ive been so drained and tired that sleep sounds amazing. I feel like that old person who goes to bed super early when the suns still out although the suns already been down for a little while now. I seriously hope I start feeling like myself again because that would suck if it didnt. 

So this People special collectors issue of Will and Kate's wedding has been sitting on my desk for some time now and I finally took a look at her dress and I love it! I want a wedding dress!! Say yes to the dress always makes me want a wedding. Anyway I cant think of anything else to write and my eyes are killing me so off to put some gel eye drops in them joy! 

<3 annie

Oh KPop

Oh Kpop how I love thy. Seriously tho. These are guys from my favorite Kpop band U.Cuz. Why do I like them? Not only are they kinda good looking BUT they wear big rings!! I love big rings!! They are like a cross between NSYNC ( umm did I even spell that right) and like that one American Idol guy who got drunk and kicked outta Lady Gagas birthday party. So yea. Kpop <3 ^_^ ( <-- I had to pull out the keyboard and look at the keys for that one ) I wish Will could get stationed at a base in Korea because I would be in HEAVEN!! I just dont think A. the need for infantry guys are great in that area and B. I need specialist doctors that I don't know if they would have. So Ill just have to keep spreading the word in the good ol US of A about Kpop. 

Ok down to business. I met a chick who had Sjogrens a few days ago!! It was so cool talking to her!! She gave me the list of her doctors and says they are beyond amazing so Im going to talk to tricare and see if I can get switched over to hers since my rhumotolgest was seeing like 6 patients and myself all at once. When I have an auto immune disorder I would really like some one on one doctor time come on people!! Not like that either you pervs. She was talking about how her meds make her motivated and she just cant stop during the day even if shes tired cuz if she lays down she either falls asleep or doesnt want to get up. That is so me!! Shes got a referral to go up to John Hopkins Hospital to the Sjogrens Syndrome Clinic and said that if I see her docs they would be able to put in the referral to that clinic also..Its a 3 day study then they send all the info back to my doctor and they set up a full and complete treatment from leading people in Sjogrens. I also became an Ambassador for Sjogrens Syndrome Foundation. Very much excited about that. Ive been feeling good other then at night. Nights are horrible for me. My body hurts sooo bad and no matter what position or how many pillows I add or take away nothing helps. Evidently my pill doc things Xanax will help that but its not really in brain thinking to much its just my body. 

Anyway I gotta get ready for the day. Im off to Lowes to pick up some paint..working on Elles dresser!! then her room will be complete and Ill post some pictures. xoxo

<3 annie

#Justsayin

I was tryin to post a picture of my new Mac Book Pro buttttt i seriously hate the whole set up of setting pictures..its like open up ur pictures then drag your picture into the area that you want to put the picture in....so if anyone knows a better way...please let me know!!! So Im chilling here watching Gossip Girl. I seriously have missed out on a lot!!! Im so between S's mom being in in-home lock down to B loosing her job lol. All my DVRs are totally jacked up so i dont really know whats going down. last one I saw B was going to like get married to some royal. i totally think that would be adorable!!! So Another adorable thing is this book! The Everygirls Guide to Life. its BEYOND fantastic!! Ive already come up with some idea just to keep myself organized in just 2 chapters. Also selling my desktop seems to be harder then i thought. Its just so hard to part with something thats so radical...and costed as much as this tiny little cute lap top. Apple aint cheap yall. I saw some lap tops at wal mart for like 200 bucks and was like WOAH!!!! Am I really making that kinda step in investing in a good lap top..or go with the one that will probably break within a month and doesnt have a good processor....as if I even know what that is. Either way I opted with the laptop that has the same kinda power as my desk top because my desk top is a beast and has done me well. Thats why I cant part with it. I know this is a blog about Sjogrens and my life with it so I guess Ill talk a little about how that is all going. I FINALLY worked out today... I cannot even explain how great it felt to do some Turbo Jam, I felt so powerful and just like my old self Im very happy my medication makes me feel so energized in the mornings. I also had the energy to take a walk down broadstreet with Elizabeth. She loved it. They have a lot of odd sculptures and water fountains. Did get much done around the house but Im starting to feel like I have a lot more energy!! Its great. I have to get my MRI soon. I have a small mass in my liver and now i found out I have something in my lungs. Joy..as if anything else could happen. Well back to Gossip girl and to catch up on some Twitter Hopefully this whole Mac life will catch on 

<3 annie 

Another Day Another Dolla

HELLO KITTY KEYBOARD AND KPOP GUY BANDS!!!! 

So since I wasn't taking up in the rapture. Evidently the WHOLE WORLD wasn't taken. Either God is racist agents mortals .....or its just not time for us to all crowd heaven...I mean if jails are so crowded they cant house Lindsey Lohan or Paris Hilton then it would be interesting to see heaven at full capacity. Now to the people yay 2 followers who read this thinking OMG why is she saying that...sorry. I spend a whole day cleaning like I was on speed...all to fall asleep the rest of the day and listen to massive amounts of K-Pop. My medications making me very energetic in the morning..its amazing!! I haven't felt that great since the Royal Wedding announcement. The downside I get VERY tired in the evening after I re-arrange my house a few dozen times. I almost feel like I'm getting back to my normal halfway lazy house wife self again. I start school too soon TY Post 9/11 bill. So now that we have one apocalyptic scenario under our belts I'm ready for zombie attack or 2012. I think if bitten by a zombie it wont effect me as much because I have an auto-immune disorder so...it could be the cure to sjogrens. I think someone needs to start some research on that. With that said Im going to look for a new cell phone cover since mine decided to break. =( It was so cute too. It said my name with little pink and purple flowers how tacky. Then fall peacefully asleep to the sound of either gossiping neighbors bragging about their payless shoe collection or William snoring like the devil. Either way I will be taking my comatose medication to bypass those 2 obstacles. Cheers

<3 Annie

Long Appointments

Today I had a very long appointment with my rheumatologist. Kayne West would have been proud. " Unrobbed then probed " With all my health issues I'm starting to get more hope for the future. I also have been tracking down my biological family ( I was adopted as a baby) Its been a very interesting emotional journey. I never would have thought so much emotion would come out when I'm basically a robot of no emotion lol Ive gotten set up on just the starting medication to start the works for a better immune system and a bunch of pain stuff and a pill that will magically make my eyes less dry. They had to stick paper down to the bottom of my eye to test how wet it got..yea it was dry...and yea it hurt...but I was laughing the whole time because I had thin strips of paper coming outta my lower eye lid. I should have taken a picture of that! I did however get one of a skelly! I seriously want one for my house..I would put it right outside my doorway to fend off any gossip talking wives. ya hurd! dawg! Finally my liver is going to be checked also!! With crap just lingering in it you think one would want to find out whats going on inside of it via MRI. but no..military doctors for you...they say. we will call you...then forget about you the sec you walk out the door. Im  starting to feel really tired and my tummy is upset so Im making this short. I cant decide if I want to do a blog or a vblog. either one sounds rad. My doc said as much as they say sjogrens is a common anti immune disorder its not. We both vote of false advertising. Ive noticed that also from the very small amount of forums/ groups for sjogrens patients and just talking to some myself. Anyway time to take a rest =) or eat

Sjogrens Syndrome

What up yall! So tomorrow I go in for my biopsy. I'm totally freaked about it but ya know...I can hack it. Ive decided I want to blog about how my treatment and everything is going because Ive noticed not a lot of people really talk about it...or even know what it is for that matter. I might even make a few youtubes about it because all the ones Ive seen have been very depressing and makes me just sad watching them. Its a condition I have to live with forever so might as well make the best of it!! Im looking forward to sharing this with you..and to people I don't know who are effected by Sjogrens syndrome also.